Comments on: PANDAS – Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococci

By: carole

carole — Sat, 15 Aug 2009 05:31:37 +0000

Warren,
OMG, I just read the article you shared with Victoria. Recall that I researched PANDAS right before I found this blog. I was a kid with some compulsions, and I think (but can’t be absolutely sure ) that it all began after an illness. Well, the behaviors you describe in your article fit me to a tee. The checking under the bed for a snake or a monster or something bad hanging out is still vivid in my memory. The checking over and over and over just wore me out. I would guess I was about 8.
I KNEW that it was absolutely silly, but each time I checked under the bed and found nothing, I became immediately convinced that I hadn’t checked well enough. There was always a reason that compelled me to check again. I would be worn out in the morning.
I am convinced I had a case of it.

By: Warren

Warren — Sat, 15 Aug 2009 04:36:09 +0000

Victoria – Take this article to your pediatrician:
http://www.christianpost.com/blogs/health/2009/03/pandas-when-proper-counseling-is-an-antibiotic-09/index.html
The top NIMH scientist is quoted in there with good information regarding the problem.

By: Victoria

Victoria — Sat, 15 Aug 2009 00:50:20 +0000

As a mother of a 5 year old w/ PANDAS, it scares me how the medical community is pushing these children aside and not treating them. I cannot even get proph antibiotics for my son even though he had his tonsils out to prevent strep, just to get strep and PANDAS resurface a month later for a 3rd time. It has been 5 months since his last strep infection. He is close to baseline and is still recovering from some residual OCD. I pray to God he doesn’t get sick again. He is entering kindergarten in a week.

By: carole

carole — Tue, 13 Jan 2009 22:44:31 +0000

This goes back to 2002–the ability of viruses to travel from the nasal cavities to the brain although, of course, ithey have to make it through the defenses. Check it out.
http://vir.sgmjournals.org/cgi/reprint/83/9/2109.pdf –

By: carole

carole — Tue, 13 Jan 2009 04:23:44 +0000

I think this is the right thread for this: Yowza! I mean I knew about the other infectious causes of schiz, but I had never heard that T. gondii was also a cause. I do know they figure that the wide spectrum of behavior termed schiz (and of course they have physiological proof that the brain has undergone deterioration by looking at scans) is caused by many things including different pathogens that have been identified as suspects, but T gondii? I've lived with cats all my life!